Is posting three times in one day a record for me? I don't think so, but the night's not yet over! I wanted to mention that Cathy O'Grady from Cathy's Creations sent me a handful of Cystinosis Bracelets to sell. If you want a bracelet and did not, or could not, order one from the website, please contact me by e-mail (LaurenLHartz@gmail.com), by phone, or on Facebook to purchase a beautiful bracelet and support the Cystinosis Research Foundation (CRF). Check out the bracelets on her website at www.cathyscreationsjewelry.com. Go to Cause Jewelry and then to Landon Cystinosis Bracelet. The cost is $35 and $5 will go to the CRF. If you get it through me, you won't have to pay shipping.
Also, here is another link to check out! This is about current research going on for treatment of the eyes for people with Cystinosis. Landon does not yet have crystals in his eyes or any light sensitivity, but it is only a matter of time. Currently the recommended treatment is to put drops in the eyes every waking hour of the day. Crazy, right?! We will do what we have to do to keep his eyes free of crystals, but with the current research, we may not have to do it that often. Keep praying that the treatment improves!
http://www.eye.uci.edu/newsletters/Fall2011Newsletter.pdf
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