Poor Boy

Oh my poor boy... It began on Sunday. We were having a great day celebrating the wonderful daddies in our lives but we realized around dinner time that something was off with Landon. He was tired, over heated, a bit lethargic and felt feverish. We got him home and he vomited as soon as I hooked him up to his nightly feed. We replaced his milk with Pedialyte and hoped for the best. It was a rough night and Monday morning I called his nephrologist. Dehydration is not good for anyone but can be very bad for a kid like Landon. I packed our bags, made some phone calls and prepared to go to Children's ER. But then, he seemed to get some spunk back do I attempted Pedialyte again. He kept it down so his nephrologist gave some recommendations and I decided to try to keep him at home. The next few days were spent with lots of clean up, interrupted sleep and cuddling but he began to seem better. Then the cough, sneezing, runny nose and congestion began.. So that's where we are... Very limited formula and cautiously giving meds.. This too shall pass, right? :0) He is such a trooper and such a funny little boy. He is learning to cover his mouth when he coughs and sneezes. He wipes his nose with Kleenex. He makes me laugh! We had a great visit with his nephrologist today. We at so blessed to have such incredible doctors taking care of our boy- all of them! His kidneys continue to function as well as any child his age. His cystine level was at 1.2 and we want to keep it below 1 so once he recovers from the sickness, we will increase his dose by 25mg. He is consistently growing and gaining weight and has actually grown over 2 inches in the past 3 months. Wow, right?! There are a couple things that they want to check- X rays to see how his bones look and if his rickets is under control and copper levels. Apparently there is a correlation between increased copper levels and being on too high of a dose of Cystagon. So there are some updates. We have severally vacations planned so hopefully our boy gets healthy again so we can enjoy the summer! Oh and one final note- the Lots of Love for Landon Golf Event is scheduled for July 6th. If you do not golf, we have dinner and a Chinese Auction to follow. Dinner is $25 per person and will start around 5pm. I hope you can join us! E-mail me at LaurenLHartz@gmail.com if you would like to join us!