Our New Normal

We are well on our way now to getting back to normal. We had a busy weekend and celebrated some pretty great events- a graduation party, a birthday party and mommy got some girl time at a bridal shower for Landon's future aunt! We were able to keep on schedule with his feedings and medication which made Jimmy and I pretty proud! He's such a 'go with the flow' kind of kid which makes it much easier to handle these extra tasks. I was away from him twice in the past 3 days, on Friday for about 2 1/2 hours and today for 6 hours. I haven't been away from him for more than about 30 minutes since he was hospitalized June 1st. Jimmy handled half of the feedings and meds on his own today and did a great job. It sounds like they enjoyed some male bonding time! I guess it's probably nice to have 'guys only' sometimes.. =0)

He has his 15 month check up schedule for tomorrow with our favorite pediatrician! We owe her a lot for being so persistent in getting Landon to see specialists that, in the end, resulted in a diagnosis and answers! She is great at what she does and has such a huge heart. We always feel so special when we go to see her. He also had an appointment with his nephrologist (who also gets a gold star in our book!) and the gastroenterologist (whose good thinking is what led us in the direction of getting the diagnosis). We are so thankful for so many people, as you can probably tell. I'm not sure what to expect from our first outpatient appointment with the nephrologist. I do know that I have to sit down and make a list of questions that I have for her. And, I kind of hope that the gastroenterologist will cut back on his daily bolus feeds a little (not too much!) so that he can have the opportunity to feel hungry and maybe eat orally. We ran a little behind schedule on his feeding this morning so when he woke up, he felt hungry. He happily ate some vegetable vegetarian soup (about 1/2 cup) and was taking some bites of my cereal. I was so excited! I will update to let you all know how these doctor's appointments went.

I have to add, I can't believe he is 15 months! I decided to resume taking monthly pictures of him. This is something I did from the time he was 2 months until he turned one year old. You can see changes but certainly not much growth during the second half of that year. It will be exciting to watch him actually grow in weight and length now! I forgot to take the picture on Friday, for 15 months, but will do it tomorrow. And, will hopefully post the pictures on here each month!