Good news!! A good friend gave me such an awesome surprise- she asked a very talented jewelry maker friend of hers to design a Cause Bracelet for Cystinosis. I received this news Saturday night (my birthday was Sunday). It was absolutely the best birthday present! $5 of the proceeds from each bracelet sold will be donated to Cystinosis Research. The link is: www.cathyscreationsjewelry.com. Go to "Cause Jewelry" and then search for Landon Cystinosis Bracelet. It's beautiful, right?! Sorry guys- it is pretty feminine looking.
Not only did I get that news, but another good friend of mine called me on my birthday to tell me that she has been working on establishing a foundation in Landon's name. I don't know much about fundraising yet, but she said that she knows someone who did it for another cause and that it makes it easier to get support from businesses and local celebrities when we do have events. She mentioned that a "Casino Night" was held for this other group among other events... How cool is that?!
In addition to all of this, my dad's friend spoke with a local bar owner who is willing to host an event at his bar. I'm not sure exactly all of what it will include because I've never been to a charity event at his bar, but I'm very excited to learn the details. I know that it involves guest bartenders though (I will do you all a favor and will not fill that role!)..
So needless to say, I am thrilled and very excited to get started on all of this. You probably won't hear much until the fall because we have some pretty special events coming up in September.
The generosity that our family, friends and even people who don't know us so well have displayed is more than we could ever imagined. For everyone who has sent us a card, offered money and gift cards, visited Landon in the hospital and at home, searched Cystinosis to learn more, prayed for Landon and for our family, called us, thought about us, read this blog... thank you... Your generosity and support is priceless... Where would we be without you?
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