Mr. Independent

We have looked forward to our boy getting older, bigger, learning new things... People say not to rush the times because their childhood goes so fast. I have never wanted to rush time but Landon accomplishing new skills and getting bigger means, to us, that he is thriving and his body is healthier... Our little guy running around full of energy means not just that he is being a toddler, but that his electrolytes are within a normal range and that the Cystagon is doing its job. We feel so blessed to watch Landon grow, change and learn right before our eyes. He is becoming more independent... Oh yes, independent. I didn't expect, at the age of two, that he would want to do his own meds and feed. It started by insisting on shaking the formula in the bottle before I poured it in the bag.. Then he liked to help me press down on the syringe to release medicine in the tube.. Now he wants to disconnect and connect the tube from his Mic Key button. He releases the opening on the side where medicine gets distributed. He sits with a syringe and carefully places it in the opening. You can see why we avoid giving him the plastic syringe in his bed whe. We can't supervise, even when he insists, because his attempts have been successful leading to wet sheets and jammies at night. Is it sad that he is so used to all of this? I used to think so but not so much now... I want Landon to learn to manage his disease and what comes along with it as he gets older. And this is a great start. It makes life a bit more interesting for Jimmy and I!