This blog began when our then 14 month old son, Landon, was diagnosed with a rare, metabolic disease called Cystinosis. He is 1 in about 2000 in the world. We have come to realize that this was only a chapter in our book so this blog will share all of our adventures.
Wednesday, September 19, 2012
Moving On...
In all of the busyness of big boy beds and preschool, I forgot to share some news. Landon had his one year evaluation for the early intervention services- in other words, all of his therapy. He was tested in several areas including gross motor, fine motor, perceptual development, expressive language and receptive language. At baseline, he scored below average in gross motor (walking) and expressive language (verbal speech). Well, I was given the news that he scored average or above average in all areas!!! This time last year, Landon was just started to walk with assistance and today he was running around the park, he jumped with both feet off of the ground (he has done this a few times but not consistently), and climbing up onto the first row on the monkey bars. Because of his scores, he does not qualify for services anymore. I am a little sad because we had a terrific group of women who were so patient and so good with Landon but I think we are ready. Yes, ready to move forward.
He will begin meeting with a therapist at the Children's Institute once a week for feeding therapy because we haven't reached our goals yet.
Landon did a great job of assuring me that he doesn't need services by walking down our front steps independently and eating pretty well over the past few days. So I genuinely, whole heartedly thank these love women who helped Landon and us. Job well done!
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