This blog began when our then 14 month old son, Landon, was diagnosed with a rare, metabolic disease called Cystinosis. He is 1 in about 2000 in the world. We have come to realize that this was only a chapter in our book so this blog will share all of our adventures.
Friday, September 14, 2012
Multiple Personalities
Landon is on the mend, I think. Sick kids, particularly those without the ability to clearly communicate, are pretty confusing. Landon woke this morning in a pretty good mood. He tolerated a full night of Pedialyte through his feeding tube. His belly tolerated 4oz of milk, twice, and all of his meds. He kept asking to go outside so we took a walk, visited Aunt Jaclyn who lives down the street and played at the park. By the time we got home he was a little agitated then I noticed that he was extra clumsy. I suspected that his fever may be returning so gave him Tylenol and put him down for a nap.
The confusing part is the abrupt changes in his mood and behavior. One moment he is laying on me looking groggy and the next he says "car," jumps on his car and heads for the door. He goes from acting silly to being ago totaled and clingy. Poor Jimmy came home ready to either play or get some cuddle time on the couch and Landon just wanted me to hold him. He laid with me, them wanted to lay on the floor. Then at 7:30, he stood up and told Jimmy "nigh, nigh." Jimmy took him to his room and by the time his Jammie's were on he seemed like himself again- even insisting that his car go in his bed and that Jimmy should read another book even after being told it was the last one. Oh, and of course he tossed his monkey on the floor only to cry in request for us to return to replace him "fa dahn" he told me. Yes, monkey must have fallen down 10 feet from the crib.
Well, hopefully tomorrow is a better day. We are keeping him hydrated and he is getting his meds. That's all I ask at this point!
Subscribe to:
Post Comments (Atom)
No comments:
Post a Comment