Wednesday, February 20, 2013

Welcome Jordan!

Wow, it's been over a month since I posted! Time flies when you are adjusting to life with two kiddos! Jordan Patrick was born on January 15, 2013 at 11:35am. He is a sweet at his big brother was as a baby, although recently it seems like he is becoming quite a firecracker. He knows what he wants and what he does not want and is sure to communicate that in the best way that his one month old body/personality knows how to. This means that he presses his lips together and gives a dirty look when we try to offer him a pacifier, yells out when I put him in the crib just a tad sooner than he is ready and protests loudly when we put him in the swing. He's sweet but fiery. Landon is a very proud big brother. He rushes to his side when he cries and asks to hold him often (he holds him for a moment, points to his facial features and names them, gives him a kiss and gives him back). I, along with my mom, took the boys to Children's Hospital last Wednesday. Jordan is now a month old and we planned to have them draw blood to check his cystine level. If it's elevated, it's an indicator that he does have Cystinosis and from there they will do a genetic test as a final confirmation. Landon was also due for blood work (he goes every 3 months now to check his cystine level and electrolytes) which by the way, all turned out beautiful. This could explain all of the energy that the child has- he's feeling good. His mom, on the other hand, doesn't have quite so much energy! Well, to make a long story short. There were 4 attempts made to get blood from Jordan. The first attempt was a success, but they did not collect enough. The final three attempts were not at all successful. The lab staff sent the first sample anyway, with hopes that the lab in California will accept a bit less than the usual protocol. We still don't know if they will accept it. So, we wait. I wish I knew that we were simply waiting for results and not waiting to find out if we have to start back at step 1, but it is what it is... So all in all, life is wonderful although a bit chaotic in our household. Jimmy and I feel as if we are always busy- changing diapers, giving baths, bed time for both, feeding (feeding, feeding, feeding!)... It's wonderful and exhausting all at the same time. We wouldn't have it any other way. =0)