Today is Rare Disease Day. A rare disease, in the United States, is defined as a disease that affects less than 200,000 Americans (www.rarediseaseday.org). Cystinosis affects approximately 500 people in the United States. Sometimes, when I actually think about this disease, and the fact that it affects our little boy all I can think is "Seriously?!" Today is one of those days. It all brings about mixed emotions. I'm proud of how far Landon has come, we have come, in the past 8 months. Yes, it has been almost 8 months since he was diagnosed. He is doing so well, but it still feels like a dream at times. That's why I don't let myself really think about it often, because I think I would go crazy. We accept the cards that were given to us and we make the best out of it. We wouldn't trade our son for anything in the world and are totally convinced that he truly is the sweetest, the cutest, and all around best kid in the world. He is a blessing to us. We are so proud to be his parents.
Jimmy was talking on the phone the other day and I overheard him telling the person on the phone, in so many words "I can't let myself think about him being sick and what's going on. If I thought about it like that then I'd be pretty messed up." It's not denial.. At least I don't think. Thinking about what may or may not happen, the fact that everything is a little more complicated for Landon and that he doesn't just sit at the table and have a meal with us but gets most of his nutrients from a feeding tube, and then he takes so much medicine, and that so many doctors know him so well... Thinking about the odds that two people who fell in love, who chose to welcome a child in the world had the same "messed up" gene...If we thought about those things on a regular basis, we may not have the same optimistic attitude about it all.
I shared something with one of the Cystinosis groups that I am a part of on Facebook the other day. Someone posted about feeling guilty as a parent who is healthy, in having a child who society says is not "healthy." My response was that I get it. I have been to the doctor a few times in the past 6 or so months. I fill out the intake form and always indicate that I have no health concerns and take no medication. I am a very healthy person. And when I complete these forms, I get a surge of guilt. Here I am, no health problems and when I complete these papers for my son, I run out of space to write all of the medications he takes (total of 8) and all of what he has been diagnosed with (Cysinosis, Fanconi Syndrome, Delayed Gastric Emptying, Hypothyroidism, Rickets- I think that's it). Another mother responded that God makes us healthy because we would be useless to our children if we had our own issues to deal with. Smart woman, right? She's right. I have been blessed with good health and I have a responsibility to take care of my health so I can continue taking care of Landon. Beginning on January 1st, I started to make some healthy lifestyle changes. It began for vain reasons... I wanted to lose about 20lbs and feel good about the way I look. But, it has become more than that for me now. I will be honest in saying that I've had good weeks and bad weeks and good days and bad days. But, I have lost over 10lbs now, have lost inches, am exercising regularly and have made some changes in my diet. I no longer drink pop (soda) and have stopped by food items that are high in sugar. I also drink a lot more water than I used to drink. I want Landon to see that exercising, eating a healthy foods and living a healthy lifestyle is just part of what we do. I hope to not only set a good example for him, but also to keep myself healthy so that I can take care of him. I owe it to my family.
So, friends, Happy Rare Disease Day (it sound strange to add "Happy" in there)! Do me a favor and send extra hugs and kisses to Landon today!
Wednesday, February 29, 2012
Friday, February 24, 2012
What a helpful little boy I have.. He is so funny and wants to be such a big boy. This evening, it started with his bath... I was getting him dressed and he automatically reaches for the cream that I use around his Mic Key button and a Q tip. We put a little bit of cream on the Q tip and he begins to rub it on his belly. He finishes, gets up and throws his towel in the hamper (without me asking him to). He begins playing a bit while I get his night time meds together. There were toys on the floor so I asked him if he wanted to put his toys in the basket- he does. Well, he put some of them in until Daddy went into the hallway closet and he rushed over hoping to snag a shoe or two out of the closet. We sat on the floor in his room and he chose several books to read. I suggested one or two and he quickly told me no as he shook his head from side to side. He chose his books and then sat on his Elmo chair. He no longer wants to sit on my lap in the rocking chair. After reading, I gave him Tylenol (I think he's getting his 2 year molars) and he insisted on putting the cap on and putting the medicine back in the box. I put him in his crib and he again, insisted on helping me put his meds into his tube. He then handed me the syringes, turned on his Sleep Sheep and laid down. I'm afraid that he will no longer need me for much at all by the time he is school age. He is such a character!
So what is going on with Landon? Well, I received a call from the Physician's Assistant that we visited with in Endocrinology. His thyroid levels are in a normal range now since he started the medicine so he said to continue doing what we are doing and that we will go back in 3 months. Good news!
He had a weight check on Tuesday. You know how we have been waiting not so patiently for him to hit 20lbs? He was 19lbs, 14oz! Can you believe it? His pediatrician and the nurse were even bummed!! I really can't be disappointed though. He lost 6 or 7oz when he was sick so actually put about 7oz back on in less than 2 weeks. I was so ready for a 20lb celebration this weekend!! Oh well- we'll wait until his 2 year check up so will be able to celebrate his birthday and 20lbs!
Here is some more good news. I don't even remember the last time Landon vomited aside from the few spit ups when he was sick. He used to vomit daily and we had to experiment quite a bit with his feeds and how much he could take in at a time and at what rate. I think he tolerates the medicine incredibly well!! I feel so blessed that he is doing as well as he is..
In more news, we now have a new Occupational Therapist. I may, or may not have mentioned, that Landon's former OT took a job and moved to Japan! Our main issue now is that Landon stores food in the side of his mouth. He has an interest in eating and asks for food, but much of the food stays in the side of his mouth and I usually have to dig it out. His new OT said that she doesn't think that he has a problem chewing or swallowing. She feels that he is not hungry because of the amount of milk he gets, but likes the food and wants to taste it so he puts it in his mouth but just doesn't swallow. She said that he is doing everything that she would be working with him on right before trying to get him to eat. He doesn't have a problem with textures, he isn't afraid to explore and play with food.. We just need to get him eating. Now, you'd think an easy solution would be to cut back on the milk and he would start eating more- that's what I thought (remember my experiments?). I guess it's not quite so simple. Once he reaches a weight that his doctors (primarily the Gastroenterologist since she is handling his feeds) are comfortable with then we will begin to wean and see how it goes. Twenty pounds used to seem like the magic number, but my sense is that it has taken so long to get here and we don't want to risk him dropping weight so we might still have time to go before we are ready for that. I hate the feeding tube, but I love what it does for Landon. He is thriving and I know that much of that is because he is getting all of the calories and nutrients that he needs.
Well, I think that is all for now. We have a fun filled weekend ahead of us beginning with Kidapalooza at the Convention Center tomorrow! Landon loves Barney and he will be there doing a sing along. I love this age!
So what is going on with Landon? Well, I received a call from the Physician's Assistant that we visited with in Endocrinology. His thyroid levels are in a normal range now since he started the medicine so he said to continue doing what we are doing and that we will go back in 3 months. Good news!
He had a weight check on Tuesday. You know how we have been waiting not so patiently for him to hit 20lbs? He was 19lbs, 14oz! Can you believe it? His pediatrician and the nurse were even bummed!! I really can't be disappointed though. He lost 6 or 7oz when he was sick so actually put about 7oz back on in less than 2 weeks. I was so ready for a 20lb celebration this weekend!! Oh well- we'll wait until his 2 year check up so will be able to celebrate his birthday and 20lbs!
Here is some more good news. I don't even remember the last time Landon vomited aside from the few spit ups when he was sick. He used to vomit daily and we had to experiment quite a bit with his feeds and how much he could take in at a time and at what rate. I think he tolerates the medicine incredibly well!! I feel so blessed that he is doing as well as he is..
In more news, we now have a new Occupational Therapist. I may, or may not have mentioned, that Landon's former OT took a job and moved to Japan! Our main issue now is that Landon stores food in the side of his mouth. He has an interest in eating and asks for food, but much of the food stays in the side of his mouth and I usually have to dig it out. His new OT said that she doesn't think that he has a problem chewing or swallowing. She feels that he is not hungry because of the amount of milk he gets, but likes the food and wants to taste it so he puts it in his mouth but just doesn't swallow. She said that he is doing everything that she would be working with him on right before trying to get him to eat. He doesn't have a problem with textures, he isn't afraid to explore and play with food.. We just need to get him eating. Now, you'd think an easy solution would be to cut back on the milk and he would start eating more- that's what I thought (remember my experiments?). I guess it's not quite so simple. Once he reaches a weight that his doctors (primarily the Gastroenterologist since she is handling his feeds) are comfortable with then we will begin to wean and see how it goes. Twenty pounds used to seem like the magic number, but my sense is that it has taken so long to get here and we don't want to risk him dropping weight so we might still have time to go before we are ready for that. I hate the feeding tube, but I love what it does for Landon. He is thriving and I know that much of that is because he is getting all of the calories and nutrients that he needs.
Well, I think that is all for now. We have a fun filled weekend ahead of us beginning with Kidapalooza at the Convention Center tomorrow! Landon loves Barney and he will be there doing a sing along. I love this age!
Wednesday, February 15, 2012
Happy Valentine's Day (a day late)
First thing's first... Landon is feeling better, Jimmy's shoulder is coming along with the help of physical therapy and I am feeling better (I also caught Landon's bug). The Hartz family is well on our way to feeling normal again!
Now I have to say, I love holidays especially now that we have Landon, but always have. Yes, even the "Hallmark holiday" Valentines Day.. Half of the people I was exposed to (mostly through Facebook) feel like I do, but many who voiced their annoyance with the holiday and those who love it. Ok, if my husband was mean to me every day but bought me roses one day of year and I bragged that one day of year about his one kind gesture than by all means, bop me over the head and give me a wake up call! But to me, this day serves as a reminder to do something a little extra. Life gets in the way at times...I don't always have the opportunity to spend nap time making chocolate covered strawberries along with cooking a time consuming dinner, not to mention if I ate like that every day I would have more weight to lose than 15 pounds!
I want to Landon to grow up in home where he sees that his mommy and daddy do nice things for each other and treat each other well but there are certain days in which it is just a little extra special. And this doesn't necessarily mean spending a lot of money. So, when Landon gets older and has someone special in his life, I hope that he takes the time to make this person feel extra special rather than writing Valentines Day off as a silly "Hallmark holiday." He will certainly get an earful from his mommy!
Now I have to say, I love holidays especially now that we have Landon, but always have. Yes, even the "Hallmark holiday" Valentines Day.. Half of the people I was exposed to (mostly through Facebook) feel like I do, but many who voiced their annoyance with the holiday and those who love it. Ok, if my husband was mean to me every day but bought me roses one day of year and I bragged that one day of year about his one kind gesture than by all means, bop me over the head and give me a wake up call! But to me, this day serves as a reminder to do something a little extra. Life gets in the way at times...I don't always have the opportunity to spend nap time making chocolate covered strawberries along with cooking a time consuming dinner, not to mention if I ate like that every day I would have more weight to lose than 15 pounds!
I want to Landon to grow up in home where he sees that his mommy and daddy do nice things for each other and treat each other well but there are certain days in which it is just a little extra special. And this doesn't necessarily mean spending a lot of money. So, when Landon gets older and has someone special in his life, I hope that he takes the time to make this person feel extra special rather than writing Valentines Day off as a silly "Hallmark holiday." He will certainly get an earful from his mommy!
Wednesday, February 8, 2012
Sick!
It began Saturday night. I put Landon to bed at 7 and ran out to do a few errands. Jimmy told me, when I called to ask him a question, that Landon was coughing a lot. I came home around 8 to find him still awake, coughing and he began to cry when I walked in the house. I went to check on him and decided to rock him a bit to get him to settle. He started coughing hard and threw up, not his milk, bit a clear substance. I stopped his feed and he ended up sleeping as he usually does. We were invited yo a birthday party on Sunday. He was acting normal but felt a little warm so I took his temperature- no fever. So, off we went to the birthday party. While we were there, he threw up that clear substance again. We left the party right after.. The rest of Sunday was a bit up and down. He was tired but seemed to act normal, but once he woke Monday, it was very obvious that he was sick. Symptoms? Terrible cough, congestion, sneezing, runny nose.. The poor boy has a heck of a time at night and staying asleep. He's so tired but can't get settled and eventually fights the whole idea of going back to sleep. His fever is not at all consistent and his breathing seems normal but we are heading to see his pediatrician this afternoon to check his ears and breathing just to be on the safe side. I will update with more info!
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Update: His pediatrician said that his breathing sounds good and his chest is clear, but he does have a ton of mucous built up. He, unfortunately, has an ear infection. Poor baby! But she said that the antibiotic should loosen all that yuck and hopefully help the coughing. No wonder the kid has had a tough time sleeping. He's usually a great sleeper (sleeps 7pm-7am and take a 2 hour nap during the day). The past two nights he has been up 2-3 times, napping less and overall exhausted from lack of sleep. He's down a bit in weight (less than a pound) which obviously bums me out but I completely understand why. Months ago I set a goal weight, I wanted to weigh under _______ (you didn't think I'd reveal my weight on a public blog, did you?!) by the time Landon hits 20lbs, well I thought he beat me to it, but it looks like we are reaching that mark right around the same time. I wish he did beat me to it, but he's still doing very well! We just have to get past this nasty bug! Thanks for caring, and I will update as the week goes forward! Hopefully he's feeling better by the weekend! We have his friend's birthday party to go to!!!!
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Update: His pediatrician said that his breathing sounds good and his chest is clear, but he does have a ton of mucous built up. He, unfortunately, has an ear infection. Poor baby! But she said that the antibiotic should loosen all that yuck and hopefully help the coughing. No wonder the kid has had a tough time sleeping. He's usually a great sleeper (sleeps 7pm-7am and take a 2 hour nap during the day). The past two nights he has been up 2-3 times, napping less and overall exhausted from lack of sleep. He's down a bit in weight (less than a pound) which obviously bums me out but I completely understand why. Months ago I set a goal weight, I wanted to weigh under _______ (you didn't think I'd reveal my weight on a public blog, did you?!) by the time Landon hits 20lbs, well I thought he beat me to it, but it looks like we are reaching that mark right around the same time. I wish he did beat me to it, but he's still doing very well! We just have to get past this nasty bug! Thanks for caring, and I will update as the week goes forward! Hopefully he's feeling better by the weekend! We have his friend's birthday party to go to!!!!
Thursday, February 2, 2012
All is Well!!
I know that I'm not updating as often as I did before. Please take this is a good thing. It just means that Landon is doing great and life is just normal. That's what we strive for! Well, not totally normal but it's not Landon. Poor Jimmy was playing basketball this past Sunday and dislocated his shoulder. He was so excited about starting up a basketball league with his friends and some family members, getting active and two games into it, it's over. The orthopedic surgeon that he went to recommended a surgery to reconstruct his shoulder but as of right now, Jimmy is taking good care of it and hoping that it heals within the next couple of weeks and is swearing off sports. His shoulder is pretty fragile, especially since dislocating it this time, and if he raises his arm up and out, the changes of it happening again are very very good. So that's what's going on in the Hartz household now... Poor guy, right?!
Appointments have slowed down which is soo nice! We go to Nephrology every 3 months now instead of months. Blood work for Nephrology is also every 3 months instead of monthly. Today Jimmy and I took Landon to get blood work for Endocrinology. He has been on the medicine for his thyroid for about a month so they want to see what his levels look like now. Poor kid. He HATES blood work. Who doesn't?! He screams and cries and then quickly says "buh buh" and blows kisses as we leave. And the band aid can't stay on much past the door to head out of the lab so we just hope that he's not bleeding much. Anyway, I'm not sure how often we will have to go to see the Endocrinologist but my guess is that it will be maybe every 3 months. We'll see! We have a break for a little while from Gastroenterology. His GI doctor wants to avoid having him in waiting areas because of flu season and so forth. We really want to avoid having him get sick! A virus for Landon could mean a few days in the hospital and we're not quite ready to go back yet. We still go for monthly weight checks with his pediatrician, but they are quick, close by and we usually leave pretty happy!!
Our little guy really is doing so well!! He is quite a character and is really testing boundaries. He's at such a fun, and exhausting age. You can tell that Jimmy and I are first time parents because we get such a kick out of these little milestones that he is hitting. I am just amazed at how well he follows commands. Now, I will say that sometimes he doesn't, but that's the rebellious Landon. I know this because he does the opposite of what I say wearing a big smile! The other day, the eraser from his chalk board was in our living room. The chalk board is in his play room, so I said, "Landon, can you put this eraser away please?" He took it, went strolling down the hallway (I followed because I assumed it would go in the bathtub or garbage can) and he went right into the playroom and put it back. I was so excited! He's also in a phase of loving to clean up, throw things in the garbage (things that belong and sometimes things that don't!) and put his dishes in the sink. Oh, can't he just stay that way?! He also likes helping me with laundry. If I say, "Landon, want to go downstairs and do laundry with mommy?" He runs to the door, puts his hands up for me to pick him up and squeels all the way down the steps.
On another note, we lost our Occupational Therapist. She took another job in (you won't believe this) Japan! How cool is that? Ms. Sandy will certainly be missed by not only me, but Landon and our dog Rocky. She allowed Landon to write with pen on her papers and allowed Rocky to jump all over her.. =0) We met our new OT this week and she seems warm, friendly and very knowledgabe. Landon actually sat for a moment on her lap (until she attempted to embrace him and then he quickly got up). He is definitely beginning to relax a little bit around people that he doesn't know well. As long as you don't try to hold him or invade his personal space, you're okay in his book! Our former OT and this new one are both very optimistic about him eating at some point and getting off the feeding tube. All agree that we need to take our time and see where he takes it.
Physical therapy is going really well!! Landon really seems to get along well with Ms. Melissa now. She can actually pick him up without him arching his back and screaming in protest. We go to a gymnastic studio every week during their free play. He loves it and is so funny! For as cautious as he is; he certainly has a bit of a daredevil side. He is so not like his mother in that way! He definitely gets that from Jimmy. I have warned Jimmy not to tell Landon about all the stunts that Jimmy and his brother pulled as kids. So, yes Landon walks on trampolines and maintains his balance even as Ms. Melissa bounces behind him. He walks up slanted, squishy mats. He is comfortably stepping up on 1-2 inch steps. There is a lot of good about Landon being in PT, but at this point, a major plus is that I am learning how to encourage and push him a bit. If he wasn't getting PT, I wouldn't think twice about him crawling up steps. But now, I am beginning to work with him on walking up and down our steps. We still have a lot of work to do, but he is moving right along.
I'm not sure if I mentioned this in a previous post, and I am way too lazy to check right now, but we decided to sign Landon up for the 2 year old program at the pre-school he is at. He will start that in the fall and will go two days a week for two hours at a time, by himself. OMG- I am actually going to drop my baby off at school, without staying, in only 8 months. They transition the kids, so I won't have to drop him off on the first day and leave. It will be a process! I hope he's ready! I think a bit of independence will do him good. Yes, he is only 2, but he's had a rough year (pre-diagnosis too) and I want him to learn to trust other people and to feel comfortable when we're not there. He is thriving at school and has learned so much! He is more interactive with his teacher and the other adults as well as the other kids. One funny thing happens at school.. He does great during "gym" (yes, they have gym which is basically play time in a room with a train table, balls, a sliding board etc) and then does really well during music when we are singing and sitting in a circle. But, the moment everyone stands up and the music goes on and we all run around and dance, he gets really upset and cries for me to hold him. And generally, he doesn't recover well from this until we leave the room and go to the class room. Once in the class room, he plays fine. I'm not sure if the noise and commotion is just really overwhelming for him. I struggle with how much to comfort, should I pick him up or should I encourage him to stand up.. I tried to move against the wall when the times comes so that no one is running behind him and around him, but so that he can see what's going on, but it doesn't help. His teacher is so kind, and said that maybe we'll change what we do a little so that we can ease him into it. On that note, I have never felt more unsure of myself as a parent than I do now! I constantly question everything I say and do with him. Should I let him stand on the couch to look out the window or should we be consistent about not standing on furniture, is he old enough to understand time out yet, what should I do when I tell him something multiple times and he still doesn't listen? He's at this weird age that I just don't understand. I get older kids a little more since I worked as a mobile therapist (although it doesn't mean that I won't have the same struggles), but at least I know what they understand.
Well, I think this little book I wrote, makes up for not posting for a little while. I will try to do better from now on, but please know, when I don't post, it probably means that all is well!!!
Appointments have slowed down which is soo nice! We go to Nephrology every 3 months now instead of months. Blood work for Nephrology is also every 3 months instead of monthly. Today Jimmy and I took Landon to get blood work for Endocrinology. He has been on the medicine for his thyroid for about a month so they want to see what his levels look like now. Poor kid. He HATES blood work. Who doesn't?! He screams and cries and then quickly says "buh buh" and blows kisses as we leave. And the band aid can't stay on much past the door to head out of the lab so we just hope that he's not bleeding much. Anyway, I'm not sure how often we will have to go to see the Endocrinologist but my guess is that it will be maybe every 3 months. We'll see! We have a break for a little while from Gastroenterology. His GI doctor wants to avoid having him in waiting areas because of flu season and so forth. We really want to avoid having him get sick! A virus for Landon could mean a few days in the hospital and we're not quite ready to go back yet. We still go for monthly weight checks with his pediatrician, but they are quick, close by and we usually leave pretty happy!!
Our little guy really is doing so well!! He is quite a character and is really testing boundaries. He's at such a fun, and exhausting age. You can tell that Jimmy and I are first time parents because we get such a kick out of these little milestones that he is hitting. I am just amazed at how well he follows commands. Now, I will say that sometimes he doesn't, but that's the rebellious Landon. I know this because he does the opposite of what I say wearing a big smile! The other day, the eraser from his chalk board was in our living room. The chalk board is in his play room, so I said, "Landon, can you put this eraser away please?" He took it, went strolling down the hallway (I followed because I assumed it would go in the bathtub or garbage can) and he went right into the playroom and put it back. I was so excited! He's also in a phase of loving to clean up, throw things in the garbage (things that belong and sometimes things that don't!) and put his dishes in the sink. Oh, can't he just stay that way?! He also likes helping me with laundry. If I say, "Landon, want to go downstairs and do laundry with mommy?" He runs to the door, puts his hands up for me to pick him up and squeels all the way down the steps.
On another note, we lost our Occupational Therapist. She took another job in (you won't believe this) Japan! How cool is that? Ms. Sandy will certainly be missed by not only me, but Landon and our dog Rocky. She allowed Landon to write with pen on her papers and allowed Rocky to jump all over her.. =0) We met our new OT this week and she seems warm, friendly and very knowledgabe. Landon actually sat for a moment on her lap (until she attempted to embrace him and then he quickly got up). He is definitely beginning to relax a little bit around people that he doesn't know well. As long as you don't try to hold him or invade his personal space, you're okay in his book! Our former OT and this new one are both very optimistic about him eating at some point and getting off the feeding tube. All agree that we need to take our time and see where he takes it.
Physical therapy is going really well!! Landon really seems to get along well with Ms. Melissa now. She can actually pick him up without him arching his back and screaming in protest. We go to a gymnastic studio every week during their free play. He loves it and is so funny! For as cautious as he is; he certainly has a bit of a daredevil side. He is so not like his mother in that way! He definitely gets that from Jimmy. I have warned Jimmy not to tell Landon about all the stunts that Jimmy and his brother pulled as kids. So, yes Landon walks on trampolines and maintains his balance even as Ms. Melissa bounces behind him. He walks up slanted, squishy mats. He is comfortably stepping up on 1-2 inch steps. There is a lot of good about Landon being in PT, but at this point, a major plus is that I am learning how to encourage and push him a bit. If he wasn't getting PT, I wouldn't think twice about him crawling up steps. But now, I am beginning to work with him on walking up and down our steps. We still have a lot of work to do, but he is moving right along.
I'm not sure if I mentioned this in a previous post, and I am way too lazy to check right now, but we decided to sign Landon up for the 2 year old program at the pre-school he is at. He will start that in the fall and will go two days a week for two hours at a time, by himself. OMG- I am actually going to drop my baby off at school, without staying, in only 8 months. They transition the kids, so I won't have to drop him off on the first day and leave. It will be a process! I hope he's ready! I think a bit of independence will do him good. Yes, he is only 2, but he's had a rough year (pre-diagnosis too) and I want him to learn to trust other people and to feel comfortable when we're not there. He is thriving at school and has learned so much! He is more interactive with his teacher and the other adults as well as the other kids. One funny thing happens at school.. He does great during "gym" (yes, they have gym which is basically play time in a room with a train table, balls, a sliding board etc) and then does really well during music when we are singing and sitting in a circle. But, the moment everyone stands up and the music goes on and we all run around and dance, he gets really upset and cries for me to hold him. And generally, he doesn't recover well from this until we leave the room and go to the class room. Once in the class room, he plays fine. I'm not sure if the noise and commotion is just really overwhelming for him. I struggle with how much to comfort, should I pick him up or should I encourage him to stand up.. I tried to move against the wall when the times comes so that no one is running behind him and around him, but so that he can see what's going on, but it doesn't help. His teacher is so kind, and said that maybe we'll change what we do a little so that we can ease him into it. On that note, I have never felt more unsure of myself as a parent than I do now! I constantly question everything I say and do with him. Should I let him stand on the couch to look out the window or should we be consistent about not standing on furniture, is he old enough to understand time out yet, what should I do when I tell him something multiple times and he still doesn't listen? He's at this weird age that I just don't understand. I get older kids a little more since I worked as a mobile therapist (although it doesn't mean that I won't have the same struggles), but at least I know what they understand.
Well, I think this little book I wrote, makes up for not posting for a little while. I will try to do better from now on, but please know, when I don't post, it probably means that all is well!!!
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