Landon went into surgery today to have a GJ tube inserted. To learn more about GJ tubes, go here: http://www.cincinnatichildrens.org/health/info/abdomen/home/gastro-jejuno-tube.htm.
The GJ tube will be used for feeding, while Landon requires a feeding tube, and for administering the medication and providing fluids in the event he becomes dehydrated. It will make life much easier, but certainly not what a parent prefers to see. I'm glad the surgery is over and we pray the there are no issues with the tube and it stays put.
From what we understand, the medicine that Landon will be taking tastes terrible. And medicine compliance is essential so rather than chance his refusal to take it or him throwing it up, we chose the GJ tube. I just pray that Jimmy, the doctors and myself make the best decisions for him. Luckily, there are excellent doctors treating him and we absolutely trust them to guide us.
He was supposed to begin taking the medication today but the insurance company is being picky and keeps requesting additional paperwork. Thank God that the nurses are handling this for us. We also applied for Medacaid to receive additional assistance for the drug and co-pays. What a great support!
We hope to go home on Monday but are prepared to stay until he is good and ready to come home! We want to go home and stay home! We are ready to move forward and get back to our new normal. We have water tables to play with, our dog to chase around the house, play dates to look forward to, and baths in the big ducky!
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