Happy Father's Day to all of the amazing daddies out there! Landon certainly has an amazing daddy and so do Jimmy and I!
Yesterday morning, Landon had an Xray done to make sure that the GJ tube was still in place. Unfortunately it is not and those who can fix that do not work on the weekends. The stomach portion looks good but the tip that goes to the Jejunum is not. We were hoping to start a small dose of feeds yesterday but no such luck. He was finally cleared to take liquids yesterday during the late afternoon but no food until the tube is in place. Landon is not a happy camper when he can't drink water or juice from his cup!
We are also still waiting for his Cystagon (the drug that treats the Cystanosis. It was supposed to come Friday but the insurance company keeps requesting more information. Plus it s the weekend so things slow down significantly. We are shooting for Monday, and at this point, hope to go home on Wed or Thurs.
We are all remaining positive (most of the time! Hehe). Some things are out of our control. Plus, Landon's mood is improving and we are getting some smiles.
We will continue to update everyone!
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