After MUCH discussion, we decided not to have the GJ tube "fixed" and allow it to function as a G tube. Landon was vomiting as a result of the delayed gastric emptying but has done well keeping fluids down lately. We are starting off very slow, at only 5cc and raising it another 5cc every four hours. He is currently getting fluids from an IV so as he begins to take more formula, the amount of fluids will decrease. Our goal is to get back up to 50cc. If his stomach can't handle the feeds, meaning that he begins to vomit, then he has to have the tube fixed and we are here several more days!
He spent the first half of the day not drinking because we were expecting that he would have to go in for a "procedure" at any time to manipulate the tube. This meant that mommy spent the first half of the day walking the halls and attempting to distract a very agitated little boy. When he was finally given the ok to drink I wanted to kiss and strangle someone. :0)
He spent the remainder of the day in a great mood. He is such a silly little boy. He is a mixture of myself and his daddy. He loves to laugh and does so easily (like me) and he likes to make others laugh (like Jimmy). You see why we work so well?!?!
I am praying and crossing fingers and toes that his little belly is ready to handle feeds, meds, food and liquids! We are so ready to go home. God bless the families who spend months in the hospital!
No comments:
Post a Comment