Our perfect little boy came into this world on April 8, 2010. It was an easy delivery for me, whatever that means! He was beautiful and absolutely perfect. Months went by as his dad, Jimmy, and I adjusted to life as new parents. He was such a pleasant baby. When he cried, he needed something and that wasn't all that often. He nursed wonderfully but around 4 months, when he was given a bottle exclusively, we realized that he wasn't a big eater. He took to solids well but seemed to want less formula. His pediatrician told us at his 6 month appointment that she wanted to keep an eye on his weight and instructed us as to how much formula he should be taking. This began our journey.
Landon continued to maintain his weight so completely fell off the weight and length charts. Some don't hold these charts to a high standard, and to each their own, but we knew something wasn't right. His head circumference however did increase. I joked that he had the body of a 6 month old and head of a 9 month old. He saw a GI doctor, dietician, a feeding team which included a dietician, occupational therapist and speech therapist. He had an upper GI test done, a sweat test for CF and a scope all which indicated that he was perfectly healthy. "There seems to be no medical reason for him not to gain weight" we were told. It made sense, it must be behavioral. We tried EVERYTHING and could not get him to eat and in turn, not gain weight. I felt like such a failure. Jimmy called me every day from work and would ask me if he ate first and then how our day was going... It consumed our lives.
Following a negative scope, the GI doctor chose to admit him at Childrens Hospital in Pittsburgh for an intense feeding therapy. When she called me to give me the details, she told me that there were traces of sugar the urine that was collected when the scope was being performed. "It is probably a fluke" she said but asked them to collect another urine sample once he was admitted. This is when we began to get some answers..
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